Pieces from The Mighty

Sunday, August 3, 2014

In Robby's Honor

I have decided to share some very personal pictures of Robby in this blog. Two of the pictures I have not shared before, but due to the reasoning of this blog, I felt compelled to share them now. They were taken the day that we buried our sweet little boy. I realize that these photographs might be upsetting to some people, so for this reason I am making this disclaimer.

At the beginning of this year, Tanner and I decided that we wanted to do something in honor of Robby. We weren't sure what or when, but we knew that this year we wanted to do something to recognize and honor the memory of our precious little Robby.

Since Robby was born prematurely we considered doing the March for Babies here in Wichita in April, but with Ellie still being in isolation during that time, we decided that it would be best to try to honor Robby that way a different year.

Robert James Smith was born at 23 weeks, 0 days  gestation. He was 1 pound 4.4 ounces and 12 inches long. He was a tiny little guy, but he certainly was perfect.
This is a picture of Robby during his two hours of life wearing his lovingly handmade pale blue hat. It was still too big for his small  head but we were so very thankful for it. Whoever took the time to make it will never know how much we appreciate this tiny little hat.

We weren't prepared for Robby to be born so early. Although I was in the hospital for 5 days in labor, the thought did not ever occur to us to prepare for him to be born, and then die. It wasn't until my body made me start pushing that I realized that I was truly going to deliver my baby, only to hold him while he died. In the moments leading up to that I wasn't thinking about getting someone to bring our camera, and I wasn't thinking about how we did not have any tiny blankets, itty bitty clothes, or tiny hats that would fit our baby boy.

Luckily, the hospital where Robby was born , Via Christi St. Joseph, had an amazing staff of labor and delivery nurses. Every single nurse that I had was kind and caring. They did not ever tell me that I was nuts for trying to keep Robby inside of me as long as possible. They did everything that they could to help me be as comfortable as someone can be when in active labor for days on end.

I will not ever forget the nurses that I had leading up to Robby’s delivery, but I especially won’t forget the nurse that actually helped me deliver him. She was the nurse who wrapped him up and gave him to me to hold.  She is the nurse who weighed him and look his length. She is the nurse who went out of her way to find a special hat for him that was small enough to somewhat fit his perfect little head. She was the nurse who I handed my baby boy over to when it was time for him to leave for the funeral home. She was the nurse who brought me warm chocolate chip cookies from the cafeteria the next day.

Thanks to that special nurse, Robby had a small little hat that came as close as possible to fit him considering his very small size. It was a tiny, pale blue, hand crocheted hat that was obviously made with love. Although it was still very big on him, we thought it was perfect. When it was time for me to give Robby to her so that he could go to the funeral home, I wanted to send him with his little hat that looked so adorable on his sweet little head, but at the same time, I wanted to keep it. That nurse went back and found a second tiny little hat to put on Robby so that I could keep the one piece of clothing that my baby boy wore. It is the only physical piece of Robby that I was able to leave the hospital with.

I have a bucket full of clothes and blankets at home that I had to pack up. These were clothes that I bought with the intention of Robby wearing someday, but that did not happen. Robby was born so quickly and unexpectedly that we did not have time to pick out a special blanket for him to be wrapped up in after he was born.

The blanket that Robby was wrapped up in was huge. Sadly, it was not a special blanket, or a soft blanket, or a cute blanket, it was just a plain and very standard hospital blanket.   

Before I continue on to the main reason for this blog, I would like to first make a plea, to all of my photographer friends out there, especially those here in Wichita.

Not only did we not have any tiny blankets for Robby, but we also did not have our camera. The only pictures of Robby that we have were taken on our phones. I love the pictures that we have of our perfect little boy, but I wish we had more and I wish they were of better quality.  I wish I had pictures of his perfect tiny little features. Pictures are the only physical evidence that Robby ever existed. After Robby was born I learned about an organization called Now I Lay Me Down To Sleep. Photographers volunteer to go take photos of babies who have been born too soon, or who were born sleeping. When I recently went to the website and searched for our area I realized that the closest photographer in our area is located in a city that is 80 miles away.

I know that this type of photography must be very hard for photographers to do, and I know that not everyone can handle it, but I ask that all of my friends who are photographers take a minute to consider submitting to this organization. You could be the person to give a grieving family something that they will treasure for the rest of their lives.

To apply to be a NILMDTS photographer go here.

The only family picture that we have with our baby boy.

Here is what my family would like to do in honor of Robby:

We would like to collect 50 small hats and 50 small blankets to donate to the hospital where Robby was born in his honor and in his memory.

They can be any kind of blankets and any color! It can be a blanket that you crochet or knit. It can be a flannel or fleece blanket that you sew together. It can be any type of soft material that you would like it to be. If you are like me and can not sew or crochet, it can be a store bought blanket or even a small receiving blanket. What I did not realize before Ellie was born was that there are different sizes of receiving blankets. We had to buy the bigger size for Ellie’s mattress cover for her isolette while she was in the NICU, and if we brought in the smaller size, they were too small and did not fit.

When I called the hospital to make sure that this type of donation would be okay, the nurse said that they do not have these types of donations very often. This made me so sad to hear, because it means that if it were not for some kind person who made that beautiful blue hat, I would not have it to hold on to. I want to make sure that other mothers and fathers of babies born too soon, or babies born sleeping have a special something to hold onto.

I have set up an email address as well as a P.O. box that I will check regularly. I would like to meet our goal by the end of this year. I would like for other families to have a special blanket to wrap their babies in and I would like other families to have a hat that comes closer to fitting their baby who was born too soon. I would love to give families something personal to hold onto when they can no longer hold onto their baby. To be completely honest, for the first six months after Robby died I slept with his hat, and sometimes I still do.

Please help us honor Robby and his memory by sending either handmade or store bought blankets that are small or hats that are small enough to fit a tiny little head. Feel free to share this blog with anyone that you know. Please spread the word because we would love to meet our goal of 50 hats and 50 blankets.
Robby wearing a preemie sized hat and a preemie sized sleeper. They swallowed him up. This is an outfit/hat/blanket that I had picked out but not yet purchased. We had planned to bring Robby home in it. My brother so very graciously and lovingly went and bought it for Robby so he could be buried in it.

Measurements: Robby's hat was 4"x4", and was still very plenty big on him. Anything that size and smaller would be wonderful! I really don't think you could make a hat too small!  For the blankets, 18" x 26" would be on the small end, and 28" x 32" would be on the large end, so anything in that range should be perfect! 

UPDATE: I started a Facebook 

page https://www.facebook.com/rememberingrobby2012

Amanda Smith
P.O Box 783
Goddard, KS 67052


  1. Amanda and Tanner, I am so sorry for your loss. Some of my friends make baby dresses out of older wedding dresses for those we have to part with way too soon.
    Supporting Perinatal Hospice is so important.
    This might be too intense for you - but for someone who needs help... http://www.youtube.com/watch?v=tY7mq1g9pGk

  2. I am so sorry for your loss. I can not imagine how it feels. You are doing an amazing thing trying to help other families. I would be honored to crochet you some baby blankets. I have not taugh myself hats just yet... I will try to get them to you by October. I will pray that you are blanketed with love and strength during your grieving process.

    1. Search online for crochet preemie hat patterns. There is a designer named Bev who has some very cute and easy ones. Also check out Allfreecrochet.com. They have lots of free patterns as well as how -to videos and tutorials. .

  3. I am so sorry for your loss. I could not imagine losing a child. I want to thank you for this blog. I am a photographer and have never heard of Now I Lay Me Down to Sleep. I do live in Wichita and I have signed up for them I also make my own props and have decided to make and donate 50 hats and 20 blankets to St Joe. I had my son there and I would like to make sure that if I can help at all I will. Thank you for sharing your story. God bless you and your family.

  4. I'll certainly be sharing your blog. Praying for you yo have God's continued comfort and support.

  5. As a former LD nurse I can tell you that births such as yours are a part of the job no one thinks about. While it was a joy to help a woman through labor and delivery of a healthy baby, it was a PRIVLEGE to be present with a family as they said hello and goodbye. Believe me, those nurses grieved for you and your baby. And remember you to this day. Blessings to you.

  6. Those are precious pictures of you and your beautiful son. My condolences!!

  7. ... and I want to add ... what a wonderful way to honour him. I would like to contribute. Are you open to hats with colour (aside from baby pink and blue)? I made a huge donation to our local hospital and their feedback was that they prefer pastel colours. Mine were predominantly white with highlights of bright colour. It was spring and I thought they'd make a nice change.

  8. Maria,
    We would love to donate all colors! Bright colors, pastel colors, whatever you make will be wonderful! Thank you so much!

  9. I am sending you items from Australia! I donate to my local NICU regularly

  10. My mother was a nurse in a NICU unit in a hospital in Tucson, AZ and an avid seamstress. She used to make dresses and shirts/vests for all of the babies in the unit for Easter. The all had very cute accessories like lace or ribbons, pockets in the shirts/vests, appliques or buttons, etc. Most of these were made from doll clothes patterns (some were adapted to fit the premises) and all were extremely appreciated by the parents. The clothes then belonged to those children and a lot of them were designed to fit the baby's personality. She did this for most of the twenty years she worked at the hospital.

  11. I am so sorry for your loss! All 4 of my babies were preemies, but not that small. And they all survived. I lost a baby to miscarriage, but it was early in the pregnancy and was too small to hold or see. I live in Wichita and am an avid crocheted. I would be honored to make some tiny hats and blankets in memory of your Robby.

  12. I'm so sorry for your loss, but I'm glad that you have something to remember your son by. I regularly donate to the Miracle Babies Foundation in Australia which then distributes the items to the hospitals. As a student, I can't really afford the postage to the U.S., sorry, but I would like to make my next donation to the Foundation in your son's name, if this is ok with you. Best wishes to you and your family.

  13. Last year I decided I wanted to crochet some preemie hats, but had not yet decided where to send them. It must have been fate that I ran across your blog today! I belong to a small crochet club and these ladies and I had made several hats I will be sending you, some small enough to fit a hard-boiled egg =), if I am able I will try to make some blankets as well before I send these out. God bless you!

  14. Also, there is some very good information here for those who are thinking of making hats for your donation http://www.bevscountrycottage.com/preemie-clothing-tips.html

  15. I am so very sorry for your families loss. For those that crochet, here is a good selection of preemie hat patterns: http://mammathatmakes.blogspot.com/p/preemie-patterns.html

  16. So So Sorry for your loss, I am in Australia and feel that it would be too expensive for me to contribute, but have started a little hat (white) and will give several to my local hospital in robbie's name, hope that is ok, thank you for your story

    1. That is so very kind of you to donate those to your local hospital in Robby's name. Thank you so very much <3

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