It feels like I just sat down to write my year end blog for
the year 2012, and now here I am sitting down to write it for 2013.
This year has flown by, and it has been an amazing year. We
started out the year 2013 with Ellie at home with us. She had only been home
about 2 weeks, was on oxygen and monitors all of the time. Although she was
home with us, our fears were not gone. We were still concerned about her brain
bleed, ROP, her chronic lung disease, and her small size.
Over the course of the year some of our fears were
eliminated.
Ellie came off of oxygen at 4 months old! That was a huge
relief for us, and I still vividly remember the fear that I had when we first
took her off! We were given a pulse ox machine to monitor Ellie’s oxygen
numbers, and to be completely honest, we still have it! There are still times
that I check her oxygen levels to make sure she is breathing at 100 percent! I
also keep it around so that when she does get sick (and I do know that she
eventually will), we will not have to go into the emergency room to have her
oxygen numbers checked.
Next up, Ellie was able to come off of her monitors much
more quickly than we had originally thought. She stayed on her apnea monitor at
night for several months after we quit day time usage, mainly to ease my own
fears.
Ellie’s brain bleed resolved itself! Although it was
considered a minor brain bleed as far as brain bleeds go, it was still a huge
relief to hear that it was gone! We had a brain ultrasound at the end of April
where they confirmed that her brain looked great!
Ellie’s ROP also resolved itself! Her eyes crossed for quite
a while, but the eye doctor assured us that it is completely normal for newborn
babies to have crossed eyes from time to time. I remember working really hard
with Ellie on tracking things with her eyes. We tried to find different toys
that would catch her interest, but in the end, the thing that helped Ellie with
her tracking…was the dogs. I was so worried back then about her eyes, but now,
I am reminded daily of how well her eyes work. Ellie has a knack for finding
the smallest speck of anything on the floor, reaches down and picks it up!
Ellie has come so far developmentally this year, from
rolling over to sitting up, to pulling up, to standing, and now taking a few
unassisted steps! She is doing so well, and I am proud of each and every
accomplishment that she makes- from mastering using her pinchers to taking her
first steps. Each accomplishment is a victory. I know that she is not right on
track developmentally as far as the October babies go, but that is okay. Ellie
seems to be hitting her milestones somewhere between the October babies and the
January babies- which is amazing! She is doing more than they expected her to
do, and for this I am thankful.
Ellie’s weight is something that I do not stress out over
anymore. For the first year of her life I kept a food journal. Everything she
ate was written down and tracked. When she turned one, I finally pitched the
food journal, and we have been sailing through ever since. Ellie is still
slightly small for her age, but she was going to be small even if she had been
full term.
I feel that this year
I have come a long way in my “grief journey.” I have recently taken a step that
I wasn't sure I would ever be able to take…I bought something that was boy
specific, and then a few weeks later I did it again. The first gift that I
purchased that was boy specific was for my Uncle and his wife, as they recently
found out that they are expecting a little boy, and the second one was for a
dear friend’s little boy’s first birthday. This was difficult for me because
the last things I bought that were for a boy I purchased for Robby on the day
before I went into labor with him, and then after he died, I had to pack them
all away in storage containers. I have also recently realized that I am having
more good days than bad days.There is not a single day
that goes by that I do not think about my son, but instead of
having days where all I want to do is cry, I can smile at his memory. I also
know that not everyone can see what big steps I have taken forward, but the
people who really know me, know that the steps that I have made this year are
huge. I still miss my son every single day, but as the days go by I am also
able to find ways to cope with my grief, and I am thankful for the people who
have stood by me during this time. I know that at times some of the people
around me have had a difficult time understanding my grief, and I do not expect
those who have not lost a child to completely understand what I am going
through, but it means so much to me when I have friends and family members who
do their best to be supportive and understanding. Thank you to my friends who
have recently been pregnant, for understanding when I am not an active
“clicker” and “commenter” on their facebook pages. It is still difficult for me
to see pregnancy and new baby related things, especially baby boys. This is
something that I am working on, and I really do appreciate all of my friends
for giving me time to find ways to cope. Also, I want to thank the loss
community, because you ladies have been a pillar of strength for me. You help
me to realize that the things that I am feeling are normal, and that is a huge
comfort to me. A good friend once said that losing a child isn't a single
event- it is a lifetime of loss. When you lose a child, you lose all of the
hopes and dreams that you had for them, and you spend the rest of your life
wondering who that child would have been. I am proud of myself for the steps
that I have taken this year.
This year I had to
say goodbye to my dog of ten years, Barbie. Barbie was a rescue dog, and
therefore, she required some extra love and care. She was extremely special to
me, which made it an especially difficult decision for me to make, but when I
am sad about it, I just remember that she led a full life and happy life here
with us and that I did not want her to suffer any longer.
I have some big plans for the year 2014!
First, a dear friend of mine has inspired me to start a year
of scripture memorization. She blogged about doing it (Click Here), and on the
same day that I read her blog, I came across a list that my great-grandmother
(Delphine, Ellie’s namesake) made years ago of scriptures that were special to
her. I took this as a sign and I am going to memorize two of her favorite
scripture verses every month. I am really excited to start this scripture
memorization, and if there is anyone else out there who would like to join in
with us, please let me know. I used to do a lot of scripture
memorization, and I am positive that it helped me in my walk with God. Memorizing scripture will help to strengthen me in times of stress and comfort me.
Secondly, this year I want to find something to do in
Robby’s honor. Whether it is planting a tree or donating to a hospital or cause
close to my heart, I want to actually do something this year. I am still trying
to decide what I am going to do, but I do know that we will be doing something.
Thirdly, Tanner and I
are moving forward with our gestational carrier plans. My doctor has contacted
our local fertility clinic on my behalf, and hopefully the beginning of 2014 I
will have an appointment to discuss doing an egg retrieval. We would appreciate
prayers as we begin this journey. One big concern right now is that I am not
sure how my health will factor into the egg retrieval process, but it is our
hope that it is something that is achievable for us. After the consultation
appointment we will begin the process of finding a gestational carrier and we
would certainly appreciate prayers for this part of the process as well. I am
still having a difficult time coming to terms with the fact that I will not be
carrying anymore children, but I think this is something that will just take
some time.
Fourth, I am going to continue to enjoy Ellie each and every
day. Good days, bad days, teething days, grumpy days, sweet days, and ornery
days- all of them will be enjoyed. Ellie is a miracle and a blessing, and I am
so thankful that I have the opportunity to watch her grow, learn, and change.
These past two years have been intense years for us. From
losing Robby, to having Ellie prematurely and all of the stuff that came along
with her extremely early birth, to being in isolation during flu and RSV season
last year and now being in isolation again for the second year. Thank you so
much to our friends and family who have stood by us through it all. We have had
some difficult times, but for those who stuck with us, we have had some really
great times as well.
I can proudly say that it has been a wonderful year, and I
am looking forward to what 2014 has in store for us!
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